Tuesday, May 3, 2011

Jason is showing more interest in food!

Jason has been eating some κΉ€ (korean roasted seaweed) for a while and some chips (mainly veggie sticks from Trader Joe's, shrimp chips) and recently, he is showing much love for ramen noodles!! 
He still cannot chew and swallow effectively.. it looks like he's melting the seaweed and chips in his mouth then swallow.. ramen noodles?  I think he's cutting them in small pieces and then just swallow.
It looks like he likes salty taste.   When I gave him some chocolate before, he threw up.  =)
When we gave hims some orage juice, he threw up that also..strange thing is that he used to drink some apple juice last summer without any problem or resistance but these days, he just wants some salty foods.
At the evaluation at KKI, they told us to train him to sit on his high chair whenever he is eating food.  We tried this and Jason is doing quite well... only problem is that he doesn't want to sit on it until he finishes his food... he wants to get out of high chair only after about 10 minutes then wants to walk aroud and eat again..
I let him move around/walk around while he eats his chips and stuff...even though I am not supposed to.
Well.. I will post some video clips of Jason "eating" some food.

Monday, May 2, 2011

ALL DONE, really!!

Last Thursday, Jason finally COMPLETED his chemotherapy!!!!
It took exactly 15 months to finish the whole chemotherapy!  We can't be any more proud and happy!
When Dr. Packer and the neuro-onc team told me "congratulations".. I almost cried..
Now, Jason and the whole family will enjoy this "treatment free" time.  =)
Jason's tumor will be monitored with MRI every three months.  His porta cath will be kept in at least until the first MRI scan shows stable tumor... then we can take the porta cath out.
Hope the tumor stays stable for a long long time so we don't have to do anything.
Now, our next goal is to finish Intenvise Feeding Therapy at Kennedy Krieger Institute sometime in this summer and Jason will be able to eat by mouth!