tag:blogger.com,1999:blog-62899193300753553832024-03-13T22:04:09.308-04:00Jason's JourneyJason was diagnosed with JPA (juvenile pilocytic astrocytoma) when he was only 19 months old. He also has spinal metastasis.hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.comBlogger49125tag:blogger.com,1999:blog-6289919330075355383.post-30708445680112624462011-12-21T12:15:00.000-05:002011-12-21T12:15:31.678-05:00Good news and bad newsLots of things happened during the past 4 months or so since I updated this blog.<br />
Jason finally got admitted to Kennedy Krieger institute's intensive feeding program and finished 2 month course of the feeding treatment. The result is absolutely amazing.<br />
Now he is eating!!!<br />
He still cannot eat regular texture foods yet and eats junior texture food (food that's similar to applesauce consistency) but we're still very glad that he EATS by mouth!<br />
He eats enough by mouth so that we could cut down on his tube feeding.<br />
Now he gets 75% of his calories from his food by mouth and only 25% by g-tube feeding.<br />
He's working on praciticing chewing and actually is much better at chewing foods now. <br />
Hopefully, soon we will increase amount of food to get rid of g-tube feeding completely.<br />
Well there is a bad news... hmm<br />
His routine MRI on October was a little questionable so he had a repeat MRI a little sooner...2 weeks ago..<br />
and the result is not so good.<br />
The tumor is slowly growing again...<br />
We are going for a second chemotherapy starting January 5 2012.<br />
This chemotherapy will last approximately 1 year as well.<br />
Weekly chemotherapy for 1 year....<br />
Well please pray hard for Jason so he can endure this round of chemotherapy well without too much complications.<br />
<iframe allowfullscreen="" frameborder="0" height="315" src="http://www.youtube.com/embed/JpgzpFj7K8s" width="420"></iframe><br />
This video clip was taken on the Thanksgiving day during home feeding practice session.<br />
We still have to follow a very strick protocol to feed him but I think it's worth it!!hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com1tag:blogger.com,1999:blog-6289919330075355383.post-48861866033508709572011-08-05T02:26:00.000-04:002011-08-05T02:26:52.793-04:00Jason is doing well!!Wow it's been already more than 2 months since I updated the blog!! I've been really lazy, haha!!<br />
Well, Jason is doing well. He is more active and playful these days.<br />
He had his routine MRI in July which showed that his tumor is still stable. Hooray!<br />
We're are still waiting to be admitted for the intensive feeding therapy at Kennedy Krieger Institute. Last month, I heard from KKI that they had submitted paperworks, clinical data/information etc to my insurance company for their approval. They said if things go well, then he will be admitted to the program maybe at the end of August or some time in September. Meanwhile, they recommended us to work with the outpatient feeding therapy program with KKI's behavioral psychologist. So we went for our first appointment last Monday and Jason did fairly well. This time, he didn't mind working with the psychologist. At our first appointment, the behavioral psychologist gathered information about Jason's feeding history and observed me feeding Jason different types of food items. Then, she recommended me to do daily "empty spoon acceptance" practice at home. Basically, I have to sit Jason on his high chair and offer him an empty stoon by saying "Jason, take a bite". When I do this I set the timer for 2 minutes. Jason has to accept 2 empty spoons during this 2 minute period. Of cours, he fought hard not to take the spoon but I managed to make him take 2 "bites" before 2 minutes was up. We have to do this everyday then next step will be offering spoon with little bit of food at the tip, the psychologist said. If this goes well and Jason takes spoons without too much fight, then he will have better chance of doing better with the intensive therapy, she said. <br />
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Jason continues to eat some foods, not enough to deliver any significant amount of calories but still this is very promising. He still loves roasted seaweed (ghim), ramen noodles, veggie chips and he also loves Korean fish jerkey (jui-po). =) I hope I can introduce some other types of foods but at this time, these are pretty much all he wants.<br />
Well, I think that's pretty much all the updates, I guess. =)<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="http://1.bp.blogspot.com/-iODRcxoxVjc/TjuMfq05zOI/AAAAAAAAAXs/JpPBDIen6oo/s1600/270276_1725807119751_1675610877_1206081_265555_n.jpg" imageanchor="1" style="clear: left; cssfloat: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="240px" src="http://1.bp.blogspot.com/-iODRcxoxVjc/TjuMfq05zOI/AAAAAAAAAXs/JpPBDIen6oo/s320/270276_1725807119751_1675610877_1206081_265555_n.jpg" t$="true" width="320px" /></a></div>hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com1tag:blogger.com,1999:blog-6289919330075355383.post-73727530028943697972011-05-03T18:08:00.002-04:002011-05-07T23:28:09.947-04:00Jason is showing more interest in food!Jason has been eating some 김 (korean roasted seaweed) for a while and some chips (mainly veggie sticks from Trader Joe's, shrimp chips) and recently, he is showing much love for ramen noodles!! <br />
He still cannot chew and swallow effectively.. it looks like he's melting the seaweed and chips in his mouth then swallow.. ramen noodles? I think he's cutting them in small pieces and then just swallow.<br />
It looks like he likes salty taste. When I gave him some chocolate before, he threw up. =)<br />
When we gave hims some orage juice, he threw up that also..strange thing is that he used to drink some apple juice last summer without any problem or resistance but these days, he just wants some salty foods.<br />
At the evaluation at KKI, they told us to train him to sit on his high chair whenever he is eating food. We tried this and Jason is doing quite well... only problem is that he doesn't want to sit on it until he finishes his food... he wants to get out of high chair only after about 10 minutes then wants to walk aroud and eat again..<br />
I let him move around/walk around while he eats his chips and stuff...even though I am not supposed to.<br />
Well.. I will post some video clips of Jason "eating" some food.<br />
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</div><div class="separator" style="clear: both; text-align: center;"><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.youtube.com/embed/G8-Y3jL-xv0?feature=player_embedded' frameborder='0'></iframe></div>hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com1tag:blogger.com,1999:blog-6289919330075355383.post-72279080102466759722011-05-02T01:17:00.000-04:002011-05-02T01:17:20.453-04:00ALL DONE, really!!Last Thursday, Jason finally COMPLETED his chemotherapy!!!!<br />
It took exactly 15 months to finish the whole chemotherapy! We can't be any more proud and happy!<br />
When Dr. Packer and the neuro-onc team told me "congratulations".. I almost cried..<br />
Now, Jason and the whole family will enjoy this "treatment free" time. =)<br />
Jason's tumor will be monitored with MRI every three months. His porta cath will be kept in at least until the first MRI scan shows stable tumor... then we can take the porta cath out.<br />
Hope the tumor stays stable for a long long time so we don't have to do anything.<br />
Now, our next goal is to finish Intenvise Feeding Therapy at Kennedy Krieger Institute sometime in this summer and Jason will be able to eat by mouth!hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com2tag:blogger.com,1999:blog-6289919330075355383.post-74489030918595164132011-04-15T14:24:00.001-04:002011-05-03T16:06:13.499-04:00Week 2 of last chemo cycle and a stable MRI!So last Thursday, Jason received chemotherapy, week 2 of last cycle without any problem. Also, the final report from last Monday's MRI came out and it was STABLE! no new growth!<br />
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The left side is from January of 2010 when Jason was first diagnosed with the brain tumor, before surgery and chemotherapy. The rigt side is from Monday's MRI. Visibly a big decrease in size overall. Jason's neuro-oncologist said it looked like about 50% reduction in overall size.<br />
Good.. Jason has two more weeks to complete the current cycle of chemotherapy. Then we will be just monitoring his tumor with regular MRI until it shows any signs of regrowth.<br />
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<div align="left"></div>hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com0tag:blogger.com,1999:blog-6289919330075355383.post-46247884904209697672011-04-10T00:05:00.001-04:002011-04-10T00:10:08.558-04:00Finally, the LAST CHEMO cycle!!Last week, Jason received the chemotherapy without any problems. This was week 1 (out of 4) of the LAST chemotherapy cycle!!! Yay! If all things go well, his chemotherapy will be completed in 3 more weeks.<br />
What a long chemotherapy it was! It took him almost 15 months to complete the induction and 8 cycloes of chemotherapy. After this chemotherapy is over, Jason will be monitored every 3 months with MRI.<br />
If there is any signs of tumor regrowth, then he will be put on some more therapy..it could be another chemotherapy or radiation, or whatever that might be appropriate at that time. Just hoping that the tumor will remain stable for a long time. <br />
Lately, Jason is showing more interest in some foods. He like to eat "gim" which is a thin roasted/seasoned korean seaweed. Also, he likes to put "veggie sticks" from Trader Joe's in his mouth. He usually take a small piece into his mouth and melts them and swallow. He still doesn't know how to chew and swallow. Basically, he is melting these food and swallow what he can. He also seems to like american cheese slices (again, these are easily melt in his mouth). I wanted to introduce more food items so I bought some cheddar cheese flavored corn puffs and dry freeze banana slices from Trader Joe's today. I think these items will easily melt in his mouth. <br />
Next month, we will start going to Kennedy Krieger Institute to prepare for the intensive feeding therapy. Jason will work with an OT (occupational therapist) weekly who can introduce many food items with variety of textures and tastes and possibly work with Jason's sensory issues while he is on the waiting list for the intensive feeding therapy. I am hoping that he can get into the intensive feeding therapy and completed it sometime in this summer and start his special education/IEP this fall. Let's have our fingers crossed!!!!<br />
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-ZsfNm92Pgxc/TaEsUs8_rQI/AAAAAAAAAXg/VKjW9GtZiiU/s1600/Jason.jpg" imageanchor="1" style="clear: left; cssfloat: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="320" r6="true" src="http://4.bp.blogspot.com/-ZsfNm92Pgxc/TaEsUs8_rQI/AAAAAAAAAXg/VKjW9GtZiiU/s320/Jason.jpg" width="272" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">my husband creasted this pic using an android app called camera 360, cool!!</td></tr>
</tbody></table>hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com0tag:blogger.com,1999:blog-6289919330075355383.post-22114450893281922442011-03-26T14:37:00.002-04:002011-04-01T17:04:58.978-04:00Updates, updates, updates...Wow...it looked like I deserted this blog for almost 2 months!!! Sorry, I've been really lazy.<br />
So many things to update.. maybe I will use bullets to organize the updates, LOL.<br />
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1. Jason's chemotherapy is going well. He just finished the cycle #7 last Thursday. Well, he couldn't totally finish it because Jason got a cold. We had to call it off after week 3 of the cycle because Jason's cold was still lingering aroud. Finally, 1 more cycle of chemotherapy and Jason will COMPLETE the chemotherapy. It was started 1st week of February 2010, so it took almost 15 months to complete. Jason is getting a one week break from the chemotherapy and will start the last cycle on 4/7/11.<br />
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2. Like I said in #1, Jason had a cold and of course fever, so he had to get a iv antibiotic therapy for 2 days. Fever during a chemotherapy when white blood cell counts are low could mean a potential for a serious infection. It's called neutropenic fever or febrile neutropenia. Luckily, his ANC was not below 500 for him to be admitted in the hospital. Doctors said it is ok for him to get 2 days of iv antibiotic therapy as an outpatient. I think Jason got sick when we invited a few families for a dinner. One family brought their daughter who was running a high fever and pretty sick....=(.... no good...no good...=( <br />
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3. I don't know if I ever mentioned that Jason has been drinking water like crazy for the past 1 year or so...I was so worried that he might have DI (diabetes insipidus) and his doctors tried to test for this last April but we couldn't get a definite result. Diabetes insipidus is a condition where one's body excretes large amount of very dilute urine and causes excessive thirst (therefore excessive drinking water). Anyways, this problem has gotten really worse lately, and Jason was drinking way too much water (almost 2.5 liters of water a day!!) and peeing way too much (leaky diapers everyday!!) and whenever he couldn't get water he would get really fussy, and he always woke up in the middle of the night several time to fuss for water. Well 2 weeks ago, we tested him again for DI and the result showed that he has a partial DI. So he was started on a hormone called desmopressin which made such a big difference! He doesn't drink water too much any more, he doesn't make crazy amount of pee any more, and most of all, he finally sleeps through the night without waking up!!! We are very happy.!!!! Well, also, he was diagnosed with hypothyroidism at the same time... so he's on thyroid hormone, too.<br />
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4. What's next? hmm... well.. we went to Kennedy Krieger Institute in January for feeding therapy evaluation. Last year, he was seen by them and they had recommended 6-8 weeks of the intensive inpatient feeding therapy.. but then he was diagnosed with the brain tumor so it was put on hold...<br />
This time, they recommended either intensive inpatient therapy or intensive outpatient therapy. The only difference is that for inpatient therapy, we need to be admitted in the hospital for the whole 6-8 weeks for the treatment. For the outpatient therapy, the therapy will be on Monday through Friday, between 8am to 5 pm, and we have to commute to KKI in Baltimore everyday for 6-8 weeks. The intensity of the treatment is about the same...But there is a long waiting list for this program. So starting May 2011, Jason will be seen by OT at KKI weekly to start feeding therapy until a spot comes up for Jason for the intensive feeding therapy. Hopefully, some time during this summer, Jason will be in the intensive feeding therapy program and will start eating some foods.<br />
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Well, I will post other updates later.. =)<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://lh3.googleusercontent.com/-27lSVdEMxSQ/TY4xX0DNXxI/AAAAAAAAAXY/wLOqLlbiVGg/s1600/jason+in+stroller.jpg" imageanchor="1" style="clear: left; cssfloat: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="240" r6="true" src="https://lh3.googleusercontent.com/-27lSVdEMxSQ/TY4xX0DNXxI/AAAAAAAAAXY/wLOqLlbiVGg/s320/jason+in+stroller.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jason in stroller, waiting for his chemotherapy</td></tr>
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<tr><td style="text-align: center;"><a href="https://lh5.googleusercontent.com/-pjkdmxogvJo/TY4xat-gm7I/AAAAAAAAAXc/d57EzEzNW30/s1600/jason+in+school.jpg" imageanchor="1" style="clear: left; cssfloat: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="240" r6="true" src="https://lh5.googleusercontent.com/-pjkdmxogvJo/TY4xat-gm7I/AAAAAAAAAXc/d57EzEzNW30/s320/jason+in+school.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jason in school, ^^</td></tr>
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<tr><td style="text-align: center;"><a href="https://lh4.googleusercontent.com/-JXDn4rtJNdk/TY4xVcv8pMI/AAAAAAAAAXU/vkZOHpyElu4/s1600/jason+in+chair.jpg" imageanchor="1" style="clear: left; cssfloat: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="320" r6="true" src="https://lh4.googleusercontent.com/-JXDn4rtJNdk/TY4xVcv8pMI/AAAAAAAAAXU/vkZOHpyElu4/s320/jason+in+chair.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jason sitting in his new armchair</td></tr>
</tbody></table>hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com0tag:blogger.com,1999:blog-6289919330075355383.post-36392783362841845502011-01-19T10:29:00.003-05:002011-01-22T00:26:48.233-05:00Good news again!Jason started 6th cycle of chemotherapy last week after holding off 1 week because of low blood counts.<br />
He tolerated very well as usual even though he chewed up the iv tubing causing one of his chemotherapy medicaiton to leak out of the tubing. He was sitting quietly in his stroller while getting the infusion watching his DVD so I thought everything was ok. Well, when about 10 minutes left to finish infusion, I found that he was chewing up the iv tubing.. and when I checked the tube, it was punctured already and medication was dripping a bit. I immediately called the nurse and she stopped the infusion and notified the doctor. They all said nothing like this ever happened before.. =( So the doctor went to search what happen if he swallow this chemo med by mouth instead of getting iv infusion.. and they had to file an incident report etc. Jason was fine and we all thought even if Jason swallowed some of the chemo med, it would cause no harm. He finished with the rest of the infusion and came home. =) He often bites and chews up his feeding tube at home causing formula leak on his crib but didn't know he would chew up the iv tubing.. next time I have to keep my eyes on him really well.<br />
Before I talk about the good news, I have to tell you about Jason's emergency room visit on Tuesday night/early Wednesday morning. Tuesday night, I started his night feeding at 11:00 pm as usual and I kind a fell asleep only to find that Jason woke up around 11:30 and playing in his crib. Since he was doing ok in his crib, I went back to sleep and later he fell asleep too. Around 2:30 amd I woke up again to refill his feeding bag and found out that his g-tube came out completely!!! With the water balloon of G-tube still inflated. The way the G-tube stays inside his stomach is that it has a balloon inside the stomach that's biggner than the size of thestomach hole (stoma) which hold the g-tube in place. The balloon is inflated with water from the outside port after it is inserted into the hole in the stomach (stoma). The strange thing is Jason's g-tube's balloon was still filled with enough water to hold it in place but somehow it didn't and came out... which means that it had to be pulled by a great force. I think when Jason was awake during the night he jumped in his crib and maybe stepped on the tubing causing snapping force to G-tube to come out.<br />
Anyhow, when I found that the G-tube is completely out, I tried to insert it back but I couldn't because the hole was somewhat alreay closed. I woke up my husband and ask his to try and he couldn't either. We we went to the Children's hospital emergency room in the middle of the night. The whole family went including Michelle. We arrived at the ER around 4:30 am and luckily the ER doctor used some trick and could insert the tube back in Jason's stomach. We're so glad that he didn't need another surgery to replace the g-tube. We had to wait until 8:30 am to have fluoroscopy (kind of x-ray) done to make sure the tube is in correct place. And it was in the correct place.. so we came home just in time for Michelle's school start @11:00 am which was delayed by 2 hours because of snow. =)<br />
Ok.. time to announce the good news! Jason had his routine MRI of brain on Thursday morning before he received his chemotherapy (so we had to stay in the hospital almost 8hours on that day to do MRI and chemotherapy). Even though the final/official reading was not ready yet on that day, Jason's neuro-oncologists and oncologists looked at the MRI result and told us that the brain tumor is smaller again!!!<br />
Yes! it's gotten smaller again! The MRI is done usually after 2 cycles of chemotherapy are done, but this time, he only received 1 cycle because of low blood counts, and only received 1/2 dose of chemo but still his tumor became smaller!! We're all happy and doctors said things are going into right direction/things look promising!!<br />
These days, Jason is overall doing very well. No vomiting what so ever since on bolus feedings; he's very active and playful. He even goes to a playgroup weekly that runs by his OT (occupational therapist) and he's tolerating that pretty well, too. =)hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com1tag:blogger.com,1999:blog-6289919330075355383.post-91479022135283724002011-01-04T09:54:00.000-05:002011-01-04T09:54:37.741-05:00Happy New Year!! and updatesWow, I've been really lazy!! I haven't posted for more than 1.5 month? =)<br />
Anyway, I wish everyone a happy new year!<br />
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Jason has been doing very well. He was finally able to finish cycle # 5 of his chemotherapy on the week before the Christmas. <br />
A major big change happened. I think it was early December that Jason's GJ tube was displaced and came up to his stomach then the tube kept migrating up to his throat choking him. It happened on a weekend while I was at work and when my husband discovered that Jason was choking from the displaced tube he heroically removed the GJ tube and saved Jason. Then my husband put a Mic-Key Gtube button in his stoma instead (otherwise the hole in the stomach will close and Jason would need another surgery to insert a new Gtube). And guess what... Jason has been tolerating Gtube feeding really well since then!!<br />
The reason Jason had to have a GJ tube in the first place was because he was vomiting so much with Gtube.. but with this emergency Gtube, Jason was doing so well. <br />
We went to see his GI doctor and she was very impressed and we decided to keep him on Gtube feeding, no need for GJ tube feeding!. and we even transitioned to bolus feedings... that is Jason gets continuous feeding only at night for 8 hours and during the day, he gets 4 bolus feedings (each 1 hour). So Jason has more tube-free time!! He's been tolerating this bolus feedings beautifully and has not vomited for past 2 weeks!!<br />
Jason had an eye exam again.. this time with Dr. Avery at the neuro-ophthalmology (which is part of the multidisciplinary brain tumor program at Children's National medical center). He found that Jason has a 4th cranial nerve palsy. =( <br />
It's a problem with the nerve that controls muscle that controls the eyeballs. With this problem, one's eyeballs are not parallel and things may look double.. and one may tilt his/her head to one side to compensate this double vision problem. Jason doesn't tilt his head to one side at all...and doctor said he might have already figured way to live with it. He said it's not a big issue now.. if it becomes problem later (double vision and tilting of head etc) then a simple surgery can fix the problem.<br />
On the New Years day weekend, we went to Wisp mountain for a family ski trip! Of course, Jason and I didn't ski at all but Michelle and my hubby had wonderful time skiing/snowboarding. Jason did well while we were there for 4 days!<br />
It looks like Jason is definitely doing and feeling well!<br />
This week, Jason will start a new cycle of his chemotherapy... I hope that he tolerates chemotherapy well and also tolerate Gtube feeding well with the chemotherapy.<br />
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Just a couple of recent pictures of Jason.<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="http://3.bp.blogspot.com/_xMZCNFgMls0/TSMy7xIl8II/AAAAAAAAAXA/ghMeOtV21TI/s1600/photo+017.jpg" imageanchor="1" style="clear: left; cssfloat: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="240" n4="true" src="http://3.bp.blogspot.com/_xMZCNFgMls0/TSMy7xIl8II/AAAAAAAAAXA/ghMeOtV21TI/s320/photo+017.jpg" width="320" /></a></div>hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com3tag:blogger.com,1999:blog-6289919330075355383.post-76684643168847764212010-11-27T23:19:00.001-05:002010-11-27T23:19:53.286-05:00Another week without chemotherapyJason's ANC is still hanging around below 500. His chemotherapy is still on hold this week.<br />
I guess the longer into the chemotherapy cycle, it is harder for his body to fully recover. =(<br />
But we're happy that he's still doing fine. No signs of any fever or illness! =)hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com1tag:blogger.com,1999:blog-6289919330075355383.post-12109717156171839102010-11-20T21:35:00.000-05:002010-11-20T21:35:12.489-05:00Chemo on hold againLast Thursday, Jason's ANC count was too low again, less than 500, meaning he's at a great risk of infection. So he could not receive his chemotherapy. Jason is still doing well, no fever, not sick. Hopefully, ANC will recover next week and we can continue chemotherapy again.hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com1tag:blogger.com,1999:blog-6289919330075355383.post-69721660312409592882010-11-14T00:06:00.000-05:002010-11-14T00:06:30.397-05:00Finally started Cycle 5Jason's blood counts finally came up for him to start cycle 5 of his chemotherapy and he tolerated the chemotherapy very well. Hooray!<br />
At home, though, he vomited several times on Thursday night... poor thing..but during the day, he's playing well and doing well without vomiting. =)hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com0tag:blogger.com,1999:blog-6289919330075355383.post-40204449158664113862010-11-05T21:09:00.002-04:002010-11-05T21:10:50.147-04:00Still no chemo!Jason could not get his chemotherapy on Thursday again, due to low ANC and platelet counts.<br />
So already two weeks behind on chemotherapy cycle#5. His last chemotherapy (cycle #4) was on 10/07/10 and it's been more than 1 month but still his blood counts are not recovered. =(<br />
But thanks to God that he doesn't have a fever and is not sick. His oncologist thinks that by next week, his blood counts should come back so he can start chemotherapy cycle #5.<br />
He is actually doing very well. Two days ago, I tried to make him wear his feeding pump in his mini backpack again like he used to before. Of course, he really hated it in the beginning but he got over it and continued to wear it for almost two hours each day. By wearing his feeding pump, I don't have to follow him around every second carrying the feeding pump. I am like a dog on a leash!!<br />
It also gives him more independenc..haha..=)<br />
I will continue to make him wear it 2-3 hours a day while he's on feeding. yay~hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com1tag:blogger.com,1999:blog-6289919330075355383.post-28482899820895315662010-11-04T00:29:00.000-04:002010-11-04T00:29:20.052-04:00Neurosurgery appointment, a good news!So we went to see Jason's neurosurgeon, Dr. Yaun today to consult about Jason's last MRI result; a slight increase in ventricle size.<br />
Dr. Yaun reviewed last MRI and other MRI's and CT's taken previously and she thought everything looked good. The increase in ventricle size was only 0.5mm to about 2mm but she said this is depending on where we measure.<br />
To her opionion, Jason's ventricle looked almost unchanged compared to the one from August, that's after his last shunt revision. And Jason doesn't have much symptoms like non-stop vomiting or being a lot fussy, headache etc.<br />
So she assured us that everything is ok.<br />
She saw Jason walking for the first time today and she was very happy about it, too.<br />
She said she would visit Jason at the oncology clinic in about 2 weeks to check on him to make sure that everything is fine. =)hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com0tag:blogger.com,1999:blog-6289919330075355383.post-81504229200256276642010-10-29T16:53:00.002-04:002010-10-29T16:56:22.738-04:00Ophthalmology appointmentHew..today Jason had an ophthalmology appointment. We've been going to the Children's hospital for the past 3 days! and I am really tired now.. each time it is at least 1.5 hours of driving to the hospital in the horrific DC metro morning traffic..exhausting..<br />
Anyway, today's eye appointment was set up urgently yesterday because of Jason's MRI finding.. the increase in the ventricle size/worsening of hydrocephalus..<br />
His neuro-oncologist wanted to make sure that increase in cranial pressure is not affecting Jason's eye nerves. It was a long appointment.. and quite traumatic to Jason.<br />
His eyes were dilated with eye drops and the doctors wanted to see behind his eyes to check for any swelling of the optic nerves but of course, Jason won't stay still so he was wrapped with a sheet and strapped to a bed with lots of velcros so he won't move around. =(<br />
He hated this so much he cried and vomited during the exam.<br />
After going through all these trauma, at least the result is good. No swelling of the eye nerves were found. Eye doctors think the increase in ventricle size/worsening hydrocephalus is not causing any damages to Jason's eye nerves.. good..hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com0tag:blogger.com,1999:blog-6289919330075355383.post-31763094839047123072010-10-28T15:08:00.005-04:002010-10-28T15:15:22.940-04:00Chemotherapy cycle #5 and MRI resultsI've been lazy lately and haven't updated the blog for a long time. Sorry..=(<br />
Anyways, Jason has been doing alright. He had his 2 weeks break from the chemotherapy and had the routine MRI last Tuesday.<br />
The MRI results is mixed.. his tumor is SMALLER again!! yay!! and his spinal metastasis are stable, yay!!<br />
But his ventricle size was slightly bigger on the MRI suggesting that his VP shunt may not be working well again!! yikes! I didn't notice too much symptoms like vomiting and fussiness but my husband feels that Jason has been a bit more fussier lately which may be contributed to inrease in ventricle/increase cranial pressure.<br />
So we're going back to see Jason's neurosurgeon, Dr. Yaun, again next week. Since Jason doesn't have too much symptoms, the neurosurgeon might just continue to monitor or she might want to take Jason back OR to adjust shunt valve again.. I don't know what the final decision will be.. We will know next week. <br />
wow.. this vp shunt thing is not easy...so much problems and hard to get complete control over it. <br />
Yesterday, Jason got a new GJ tube placed because it was leaking a lot making such a mess, staining his clothes everyday. This time placeing the new GJ tube under the fluoroscopy was a breeze! done so fast, only took 15 minutes or so. I really liked that.. hope this tube stays in place for a long time without causing too much trouble.<br />
Today would have been the first day of Jason't new chemetherapy cycle (cycle#5) but Jason could not get his chemotherapy today because today's blood tests revealed that his platelet count was too low (meaning that he is at a higher risk of bleeding). During 2 weeks of break from the chemotherapy, his blood counts supposed to bounce back and become close to normal for him to get chemotherapy again but this time for whatever reason, his blood counts didn't recover... too bad...=(<br />
So his chemotherapy was postponsed untile next week. Hopefully, next week, Jason's blood counts will recover for him to receive chemotherapy.hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com0tag:blogger.com,1999:blog-6289919330075355383.post-69813136672157441702010-10-06T12:11:00.000-04:002010-10-06T12:11:58.882-04:00Video clips of Jason walking!<object height="385" width="480"><param name="movie" value="http://www.youtube.com/v/ka2bJZpKQYg?fs=1&hl=en_US"></param><param name="allowFullScreen" value="true"></param><param name="allowscriptaccess" value="always"></param><embed src="http://www.youtube.com/v/ka2bJZpKQYg?fs=1&hl=en_US" type="application/x-shockwave-flash" allowscriptaccess="always" allowfullscreen="true" width="480" height="385"></embed></object><br />
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<object height="385" width="480"><param name="movie" value="http://www.youtube.com/v/KFZRGDNHhQA?fs=1&hl=en_US"></param><param name="allowFullScreen" value="true"></param><param name="allowscriptaccess" value="always"></param><embed src="http://www.youtube.com/v/KFZRGDNHhQA?fs=1&hl=en_US" type="application/x-shockwave-flash" allowscriptaccess="always" allowfullscreen="true" width="480" height="385"></embed></object>hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com1tag:blogger.com,1999:blog-6289919330075355383.post-30066015299482421832010-10-03T01:28:00.001-04:002010-10-03T01:29:24.012-04:00Chemotherapy cycle 4, week3Jason did well with his chemotherapy this week.<br />
I was sick with a mild cold last week (still coughing...thought) and Jason might have gotten a mild cold from me also.. he was a bit more fussy and vomited little more this week... making us all worry again but he's getting better.<br />
He's making more progress in terms of walking. When I hold his hands to help him walk, he now will let his hands go and will walk about 10 steps or more on his own. Jason likes to practice alot... hopefully, he will walk soon. =)hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com1tag:blogger.com,1999:blog-6289919330075355383.post-19093094656329428942010-09-23T15:52:00.002-04:002010-09-23T15:55:02.850-04:00chemotherapy cycle 4Jason started cycle #4 of his chemotherapy last week. Today was the 2nd week, and he tolerated well.<br />
Mommy was sick with a cold so daddy went to the clinic together. =)<br />
Today, 7 times Tour de France champion and a cancer survivor Lance Armstrong came to the Children's National Medical center to visit kids with cancer... and guess what, we had a chance to talk to him and take some pictures!! =) <br />
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<tr><td class="tr-caption" style="text-align: center;">Mr. Amrstrong looking at Jason</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">taking picture w/ Mr. Lance Armstrong</td></tr>
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</div><div align="left">Jaon is doing much better. Now he can walk with holding mommy/daddy's hands. If mommy/daddy let go of his hands, he can still take about 10 steps on his own. He has his ankle brace that he can wear.. he hates it but we will continue to try it on while he's sleeping.</div><div align="left"><br />
</div><div align="left">This video clip was taken yesterday.. he's walking along the rail/holding the rail. =) Sorry for the tilted image. turn your head or turn your computer screen. =P</div><div align="left"><br />
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</div><div align="left">This was taken on the same day.. Jason is "playing" the piano. He loves to play the piano..soon we have to start the piano lesson! =P</div><div align="left"><object height="344" width="425"><param name="movie" value="http://www.youtube.com/v/R6hUD7NkvzY?hl=en&fs=1"></param><param name="allowFullScreen" value="true"></param><param name="allowscriptaccess" value="always"></param><embed src="http://www.youtube.com/v/R6hUD7NkvzY?hl=en&fs=1" type="application/x-shockwave-flash" allowscriptaccess="always" allowfullscreen="true" width="425" height="344"></embed></object></div>hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com0tag:blogger.com,1999:blog-6289919330075355383.post-41344031915050494172010-09-09T13:25:00.000-04:002010-09-09T13:25:59.336-04:00September is childhood cancer awareness monthI just took the survery. The "Facts" below are too sad.....=(<br />
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From: <a href="http://www.surveymonkey.com/s.aspx?sm=9mf%2buPwkhAtSxfneQUjTQw%3d%3d">http://www.surveymonkey.com/s.aspx?sm=9mf%2buPwkhAtSxfneQUjTQw%3d%3d</a><br />
September 2010 Childhood Cancer Awareness Month Surveyhttp://curechildhoodcancer.ning.com/ <br />
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2. Thank you for participating in the Inaugural PAC2 September Childhood Cancer Awareness Survery! <br />
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Thank you for taking the survey. Sadly, all of #9 is true...<br />
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<span style="color: #660000;">The Facts:</span><br />
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<span style="color: #660000;">- chances are about 1 in 300 any child will be diagnosed with cancer before age 20</span><br />
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<span style="color: #660000;">- Every day 40 to 50 children are diagnosed with cancer </span><br />
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<span style="background-color: #0b5394; color: #660000;">- 1 in 4 of these children will die within 5 years</span><br />
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<span style="background-color: #0b5394; color: #660000;">- 2 in 4 will survive 5 years but develop long-term, life-altering and threatening health problems </span><br />
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<span style="background-color: #0b5394; color: #660000;">- Only 1 in 4 will survive 5 years without major problems </span><br />
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<span style="color: #660000;">- There are no warning signs or unhealthy lifestyles. No regard to race, creed, color, religion, or socio-economic status.</span><br />
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Despite these facts, childhood cancer is considered "rare". Yet, does two classrooms of children diagnosed with cancer every school day, with one-half of a classroom dying from cancer, sound "rare"? It’s “rare” only if it’s not happening to your child. But for over 12,500 children and families in America this year, it will not be "rare". Each will discover the desperate need for increased funding specifically for kid cancer research, while enduring the most devastating experience of their lives. <br />
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When many people hear childhood cancer, they may only think of St. Jude and TV ads with cancer kids with round faces (from steroids) and bald heads (from chemo). Yet while it is a leading childhood cancer research center, St. Jude doesn't work exclusively on cancer research and treats less than 5% of all children with cancer. Or perhaps you think of the American Cancer Society and its support for childhood cancer? Unfortunately, in 2008, with $1,078 million of public support; the ACS gave only $4.2 million to childhood cancer research, less than 1/2 a penny for each dollar of support.<br />
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Nearly 90 percent of cancer kids are treated by members of the Children's Oncology Group (COG), an international consortium of over 230 hospitals and doctors working together and cooperatively sharing results. This cooperative research allows COG to improve cure rates at a faster pace than any single institution could accomplish alone.<br />
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As a nation, shouldn't we prioritize saving our children? The facts on funding suggest we don't. So your help is needed. No child should ever have to ask, "Mom and Dad, what's hospice?" <br />
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Please help us cure childhood cancer: <br />
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1 - Share this survey with family, friends, teachers, co-workers, sports teams, scouts, PTA, etc<br />
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2 - Sign & support the Cure Childhood Cancer: Raise Awareness & Funding petition at http://www.thepetitionsite.com/1/CureChildhoodCancer<br />
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3 - Join PAC2 (http://curechildhoodcancer.ning.com), a childhood cancer advocacy community to learn more about these issues and ways to help<br />
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4 - Donate to organizations specifically devoted to funding childhood cancer research at COG hospitals:<br />
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St. Baldricks Foundation <br />
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St. Baldrick's uses donations to volunteers who shave their heads in solidarity with kids fighting cancer to fund more childhood cancer research than any organization except the US Government.<br />
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CureSearch for Childhood Cancer <br />
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(http://www.curesearch.org)<br />
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CureSearch supports the Children’s Oncology Group, the world’s premiere pediatric cancer research collaborative that treats more than 90% of all children with cancer.<br />
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Alex's Lemonade Stand Foundation<br />
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Alex’s Lemonade shares the vision of its founder and creator, Alex Scott, who at age 4 began selling lemonade to fund research into a cure for all children with cancer. <br />
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Rally Foundation for Childhood Cancer Research<br />
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Through volunteers participating in athletic events, Rally raises awareness and funds for childhood cancer research. <br />
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On behalf of the 46 kids diagnosed with cancer today, thank you. We hope the day comes soon when we can say: It's not "rare", it's EXTINCT!hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com1tag:blogger.com,1999:blog-6289919330075355383.post-33017146868390098292010-09-07T12:26:00.003-04:002010-10-03T01:16:08.281-04:00Trip to Ocean City, MDIt's been a while since we had a vacation. Traveling with Jason is very very challenging. But on the Labor day weekend, we went to Ocean City, MD for 3 days, for our much needed family vacation. Well, overall it was quite nice..we didn't get to go to the beach to play but it was fine. We went to the boardwalk on one night and Jason tolerated quite well. I think he actually liked the loud music and stuff.. =)<br />
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</div><div class="separator" style="clear: both; text-align: left;">This week, we skip physical therapy at KKI because Jason has an appointment with his neurosurgeon on the same day (& same time!). We will probably continue just 2 more weeks of physical therapy and will stop it because there aren't much done at each physical therapy session other than some advice and ideas to try at home from the therapist. She said that there are not much to offer from her since Jason is so resistant to the therapy. She thinks that with the brace he will get better. If he doesn't get any better by the winter time, we can reconsider physical therapy again....=( </div><div class="separator" style="clear: both; text-align: left;">By next week, Jason's ankle brace should be ready..hopefully, he can keep this thing on as supposed to.</div><div class="separator" style="clear: both; text-align: left;">He continues to try to stand up and he's quite active these days. He climbs up on sofa, bed and stuff.. This morning he climbed and went up on the stairs all the way to the 2nd floor. I think he's getting better and better... hope that his right ankle straightens out soon so he can walk again! =)</div>hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com1tag:blogger.com,1999:blog-6289919330075355383.post-50367517093420302042010-08-29T03:30:00.001-04:002010-08-29T03:35:53.664-04:00Finished 3rd cycle of chemoJason finished 3rd cycle of chemotherapy last Thursday.. Almost 3 weeks of break from now!!<br />
His ANC (absolute neutrophil count) was low so he could only get 75% of the carboplatin.<br />
The ANC was worse last week, only around 250.. so he could not get carboplatin at all.<br />
This week's ANC was little bit up, a little over 500, which is still low.. that's why he only received 75% of the carboplatin. Carboplatin is known to cause myelosuppression, causing all the blood cell counts to decrease.<br />
Low ANC means that his white blood cell counts are low.. which means that his immune system is quite weak..therefore higher risk for infection. Doctors warned us about any episode of fever, in which case Jason needs to come in to hospital to receive broad spectrum antibiotics.<br />
Luckily, he's been doing fine without any signs of fever.. thank God.<br />
Little information about low ANC and neutropenia..<br />
Neutropenia basically means low number of neutrophils which are type of white blood cells.<br />
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Mild neutropenia (1000 <= ANC < 1500) — minimal risk of infection <br />
Moderate neutropenia (500 <= ANC < 1000) — moderate risk of infection<br />
Severe neutropenia (ANC < 500) — severe risk of infection<br />
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So Jason is quite severely neutropenic, which put him at a severe risk of infection... wow..but like I said.. he's been doing fine (fingers crossed).<br />
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Jason had his initial evaluation for physical therapy at the Kennedy Krieger Institute on 07/28. They suggested that we use a brace for his right ankle/foot or serial casting to stretch his right ankle muscle which is severely tightened and curved inward. Then we had our 1st appointment 2 weeks ago, the therapist couldn't work with Jason much since he was crying and fussing alot, going crazy....They tried to put a cast on his right leg to make the brace but couldn't do it because Jason resisted so much.. not much done..disappointed...<br />
And last Wednesday, we went there again, this time, I went there all prepared..brought some very sedating anti-nausea medicine.. which I gave to Jason just before they put cast on him. It worked and he slept through while they got a cast/mold of his right leg successfully so that they can now make a brace for his right ankle.. haha..<br />
It will take about 2-3 weeks to get the brace made..(long long time!!!) then Jason will have to wear it everyday to help stretch out his tightened right ankle muscle.. But honestly, I don't know if Jason can keep it on or not..<br />
He doesn't even tolerate socks or shoes... hew...=(<br />
Anyways.. these are what's been happening with Jason lately...<br />
I am kinda disappointed that physical therapist at KKI couldn't work with Jason too much..she took Jason to treatment room while I was waiting outside.. we thought that me not being in the treatment room might be better, because when I am there, Jason always comes to me crying and don't want to do anything with the therapist. So we tried.. I waited outside, while the therapist took Jason inside the treatment room.. <br />
Result??? she came out almost right away.. because Jason was crying so much and vomited all over!! haha..<br />
I really don't think this physical therapy thing will work out.... <br />
Oh, by the way, Jason is trying hard to stand up by himself without holding onto anything..yay! and he's been cruising along the furnitures (sofa, table etc) and trying to climb up the stairs, too. =)hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com2tag:blogger.com,1999:blog-6289919330075355383.post-87970607277315879732010-08-09T13:30:00.000-04:002010-08-09T13:30:27.648-04:00Home againJason's surgery went well.<br />
The problem was malfunctioning valve. Dr. Yaun tested the catheter inserted into Jason's brain and it worked fine, she tested the catheter that drained cerebrospinal fluid into his belly and that worked fine.. so no blockage at all any where. She then found out that it was the programmable valve that wasn't working. So she placed a new valve again, this time not the programmable one, but she adjusted the valve pressure to allow just right amount of CFS to drain, hopefully, so that it won't cause subdural hematoma like before and hopefully work fine this time.<br />
We don't know why the valve stopped working but Dr. Yaun and I, all think it was the MRI from July. The programmable shunt had magnets inside the valve that allow flow adjustment and per Dr. Yaun, this valve is supposed to be MRI compatible (MRI machine is a huge magnet so usually not compatible w/ machines with metals & magnets..) but somehow it seems like the MRI broke the valve...=(<br />
That's why she didn't put the same valve this time, because Jason will get MRI every 3 months to monitor his tumors, and we don't want to risk valve malfunction again.<br />
He did fine after the surgery and we came home on Sunday.<br />
Hopefully, this time, the shunt will last for a long time without any problems or complications.hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com3tag:blogger.com,1999:blog-6289919330075355383.post-2750464353196215392010-08-06T21:44:00.001-04:002010-08-06T21:48:11.297-04:00Shunt revision surgery tomorrwI haven't posted for a while..<br />
I was going to post about our trip to the Kennedy Krieger institute and how Jason started cruising recently..<br />
Well, but I have to post a sad news.<br />
Jason is back in the Childrens National Medical Center.<br />
He was doing wonderful until this Monday when he started to retch and vomit again. Since he was off the chemotherapy for the past 3 weeks, there was no reason for him to start retching and vomiting. It appeared that retching and vomiting was getting a little bit worse day by day.. and yesterday, when we went back to Childrens hospital for his 3rd round of chemotherapy, I raised my concern to his doctors. They ordered a head CT scan yesterday which showed increased fluid collection in his ventricles (worsening hydrocephalus). The neurosurgery people came to the oncology clinic and they adjusted Jason's VP shunt setting to allow more flow/increase flow rate. After 8 hours of long hospital visit, we came home hoping that Jason's vomiting will get better with VP shunt flow adjustment.<br />
Well, things don't always go the way we want...=(<br />
Last night, Jason developed severe vomiting and retching.. from around 2:00 to 3:30 am, his vomiting and retching was almost non-stop. Finally I gave him some anti-nausea medication and he fell asleep.<br />
This morning, he woke up vomiting and retching again.. so I knew something was definitely wrong.<br />
So I emailed his oncologist, neuro-oncologist and neurosurgeon about what happened last night. They immediately called me and told me to bring Jason to the emergency room.<br />
At the ER, Jason got head CT scan again and X-ray of head, chest, abdomen.. and finally when the neurosurgery team tried to tap his VP shunt for CSF sample, they couldn't get any... meaning that Jason't VP shunt is not functioning, no flow, it's blocked!!<br />
Dr. Yaun, Jason's neurosurgeon, came by and she scheduled an operation to repair VP shunt tomorrow morning...<br />
I know VP shunt malfunction is a common problem, but why can't we bypass this problem???<br />
Jason had subdural hematoma only 2 months ago because of over-shunting and now he has a blocked shunt!!!<br />
How unlucky!...<br />
well..I am just hoping that tomorrow's surgery will go uncomplicated.. and everything will be fixed and Jason will be fine!!<br />
God!! please help Jason!hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com0tag:blogger.com,1999:blog-6289919330075355383.post-51684149377197323252010-07-22T10:51:00.001-04:002010-07-22T10:53:39.550-04:00Jason is pulling himself up again!Ok..maybe the 50% dose reduction of vincristine is taking its effect..<br />
Jason is pulling himself up again!!<br />
Lately, he was more willing to try to stand up when assisted by mom or dad.. but on Monday.. he just grabbed the crib rail and pulled himself up!!<br />
We all cheered for him and yes! he is proud of himself and he wants to show off more and more.. and he keeps on doing it.. haha..<br />
His feet are still curved inside (because of tightened cord/muscle), specially the right foot.. so when he stands up, the side of his right foot is on the surface that he's standing on.. but, still a BIG progress!! Good job Jason! Keep up the good work!<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/_xMZCNFgMls0/TEhZrrjXERI/AAAAAAAAAWM/mkAJRv1k6Gs/s1600/Picture+010.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" hw="true" src="http://4.bp.blogspot.com/_xMZCNFgMls0/TEhZrrjXERI/AAAAAAAAAWM/mkAJRv1k6Gs/s320/Picture+010.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jason pulling himself up!</td></tr>
</tbody></table><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/_xMZCNFgMls0/TEhZtlu55sI/AAAAAAAAAWU/d0VbIooTWh0/s1600/Picture+011.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" hw="true" src="http://2.bp.blogspot.com/_xMZCNFgMls0/TEhZtlu55sI/AAAAAAAAAWU/d0VbIooTWh0/s320/Picture+011.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">So proud of himself!! haha</td></tr>
</tbody></table>Here is a video clip of Jason pulling himself up.. sorry for the tilted image in the beginning.. hahaha<br />
<object height="344" width="425"><param name="movie" value="http://www.youtube.com/v/mfENtNSUSnM&hl=en&fs=1"></param><param name="allowFullScreen" value="true"></param><param name="allowscriptaccess" value="always"></param><embed src="http://www.youtube.com/v/mfENtNSUSnM&hl=en&fs=1" type="application/x-shockwave-flash" allowscriptaccess="always" allowfullscreen="true" width="425" height="344"></embed></object>hjl7215http://www.blogger.com/profile/12036712142416061803noreply@blogger.com2