Happy New Year!! and updates

Wow, I've been really lazy!!  I haven't posted for more than 1.5 month?  =)
Anyway, I wish everyone a happy new year!

Jason has been doing very well.  He was finally able to finish cycle # 5 of his chemotherapy on the week before the Christmas.
A major big change happened.  I think it was early December that Jason's GJ tube was displaced and came up to his stomach then the tube kept migrating up to his throat choking him.  It happened on a weekend while I was at work and when my husband discovered that Jason was choking from the displaced tube he heroically removed the GJ tube and saved Jason.  Then my husband put a Mic-Key Gtube button in his stoma instead (otherwise the hole in the stomach will close and Jason would need another surgery to insert a new Gtube).  And guess what... Jason has been tolerating Gtube feeding really well since then!!
The reason Jason had to have a GJ tube in the first place was because he was vomiting so much with Gtube.. but with this emergency Gtube, Jason was doing so well. 
We went to see his GI doctor and she was very impressed and we decided to keep him on Gtube feeding, no need for GJ tube feeding!.  and we even transitioned to bolus feedings... that is Jason gets continuous feeding only at night for 8 hours and during the day, he gets 4 bolus feedings (each 1 hour).  So Jason has more tube-free time!!  He's been tolerating this bolus feedings beautifully and has not vomited for past 2 weeks!!
Jason had an eye exam again.. this time with Dr. Avery at the neuro-ophthalmology (which is part of the multidisciplinary brain tumor program at Children's National medical center).  He found that Jason has a 4th cranial nerve palsy.  =( 
It's a problem with the nerve that controls muscle that controls the eyeballs.  With this problem, one's eyeballs are not parallel and things may look double.. and one may tilt his/her head to one side to compensate this double vision problem.  Jason doesn't tilt his head to one side at all...and doctor said he might have already figured way to live with it.  He said it's not a big issue now.. if it becomes problem later (double vision and tilting of head etc) then a simple surgery can fix the problem.
On the New Years day weekend, we went to Wisp mountain for a family ski trip!  Of course, Jason and I didn't ski at all but Michelle and my hubby had wonderful time skiing/snowboarding.  Jason did well while we were there for 4 days!
It looks like Jason is definitely doing and feeling well!
This week, Jason will start a new cycle of his chemotherapy... I hope that he tolerates chemotherapy well and also tolerate Gtube feeding well with the chemotherapy.

Just a couple of recent pictures of Jason.