I've been lazy lately and haven't updated the blog for a long time. Sorry..=(
Anyways, Jason has been doing alright. He had his 2 weeks break from the chemotherapy and had the routine MRI last Tuesday.
The MRI results is mixed.. his tumor is SMALLER again!! yay!! and his spinal metastasis are stable, yay!!
But his ventricle size was slightly bigger on the MRI suggesting that his VP shunt may not be working well again!! yikes! I didn't notice too much symptoms like vomiting and fussiness but my husband feels that Jason has been a bit more fussier lately which may be contributed to inrease in ventricle/increase cranial pressure.
So we're going back to see Jason's neurosurgeon, Dr. Yaun, again next week. Since Jason doesn't have too much symptoms, the neurosurgeon might just continue to monitor or she might want to take Jason back OR to adjust shunt valve again.. I don't know what the final decision will be.. We will know next week.
wow.. this vp shunt thing is not easy...so much problems and hard to get complete control over it.
Yesterday, Jason got a new GJ tube placed because it was leaking a lot making such a mess, staining his clothes everyday. This time placeing the new GJ tube under the fluoroscopy was a breeze! done so fast, only took 15 minutes or so. I really liked that.. hope this tube stays in place for a long time without causing too much trouble.
Today would have been the first day of Jason't new chemetherapy cycle (cycle#5) but Jason could not get his chemotherapy today because today's blood tests revealed that his platelet count was too low (meaning that he is at a higher risk of bleeding). During 2 weeks of break from the chemotherapy, his blood counts supposed to bounce back and become close to normal for him to get chemotherapy again but this time for whatever reason, his blood counts didn't recover... too bad...=(
So his chemotherapy was postponsed untile next week. Hopefully, next week, Jason's blood counts will recover for him to receive chemotherapy.
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